Im 32 years old and didnt expect at all that my aorta would dilate. Bicuspid aortic valve is a heart problem present at birth. I do think that aspects of the martial arts are strength-related. Is this the case? I dont believe there is any evidence that would help us know if some forms are safer than others. I read most of the posts above and I didnt find people describing the decrease in performance due to the BAV. I suspect it had been leaking for a long time, as I felt no different; however, my recovery from long runs took longer than in the past (old age?). Yesterday, for example, I spoke with a 71-year old patient who just had aortic valve replacement surgery due to this . With the blood thinning needed for a mechanical valve, serious bleeding may occur with injuries. His only complaint or change is shortness of breath with stairs. I am a 60 yo female who has been active my whole life. Pop Medicine > Celebrity Diagnosis . I wouldnt put you in the position of giving me your opinion in a public in forum but just let me know if based on the following, you think Im crazy or not. If a large enough valve is implanted, there may be no noticeable impact on the ability of the heart to do extra work that comes with running (or any exercise). Bicuspid Aortic Valve Hi Dr. Creswell. His last MRI showed a dilation of 4.4cm at his aorta root but his BAV is fine with very little leakage. They all cause a small bit of obstruction to blood flow as it leaves the heart. Should I stop jiu-jitsu as it is a mix of anaerobic exercise (which I hear is bad) and aerobic exercise (which I hear is good)? with an efficiency of 69%, I have an appointment with a specilaist next week and am just wanting some, even if vague, answers. lifting a max bench of 150 lbs Anyway, it has slowed to 1 mm per year, and, via email, Dr. Dietz has suggested we may consider a switch to 300 mg Libersartan? My exercise is limited to 30 minutes of moderate carido, with no weights. From your standpoint (and your sons), it will be important to have that dialog to sort out whats safe. Perhaps your primary care doctor or cardiologist could help you find another specialist in your area who could help with thatlook over all of the pertinent information and share an opinion about whats safe. In my practice, we often do such second opinions (about all sorts of issues) and I have found that athlete patients usually value the information that comes from such visits. Your web site and the links have much good information. I continued playing hockey routinely until I was in my late twenties. Keyhole just refers to the type of incision used for conventional valve replacement like you had. Went through the process of antibiotic therapy and. But, while doing my cardio stress test they discovered that I have a Bicuspid Aortic Valve. Im highly considering this option, after 4 months of research and appointments with doctors. While I recovered from surgery just fine, my return to my normal activity levels has been hampered by recurring arrhythmias, muscle atrophy during recovery, medication,and general inability to exert myself like I could prior to surgery. The increased stroke volume and cardiac output may cause . diagnosed wid BAV AND AS WITH AR http://www.24hourgym.us. But, three heart valve surgeries! Bicuspid aortic valve is the most common congenital cardiovascular anomaly, occurring in 1-2% of the population. Kimberly was born with an abnormal valve, but didn't begin to develop symptoms until her 40s. Perhaps the doctor could contact the specialist and request an earlier appointment, if that made sense. Bicuspid aortic valve with Marfan and other HTAD when the ascending aorta is dilated >45 mm. BAV is the most prevalent congenital heart defect, but can go undetected for years - even into adulthood. Well, as it happens, the Cleveland Clinic has been recently rated the top heart hospital in the nation, and the number two hospital overall. He is on meds to slow it down. Aortic stenosis, the narrowing of the aortic valve. I dont know why this formed as I have had the problem valve replaced many years ago. My mom [and aunt] passed away [in their 60s from heart disease], and my dad had a heart attack when I was around 10 and he had a triple bypass, the actress told PEOPLE. thanks for sharing all this interesting info. (I'm a 17 year old female)After a heart echocardiogram yesterday we found out I have a bicuspid aortic valve, I originally went in to the cardiologist for extreme fatigue, constant racing heart (avg around 130bpm resting), palpitations, spells where I almost faint, feet swelling and turning purple, etc . The free weights are about 10kg and Im not doing any really heavy weights. Doing nothing wont be great for my heart and wont extend my life neither probably.. My problem is a perpetual fear and worry about having this diagnosis and having to someday undergo open heart surgery. There is recent interest and experience with aortic valve repairinstead of replacementfor patients with BAV. Perhaps the best course of action might be to start off very conservative with exercise, as you are doing, with periodic assessment of the aortic valve and aorta with echo and CT. You might then gradually increase the activity and monitor for any bad signs with the periodic echos and CTs. Advances in treatment have allowed many babies with known congenital heart disease to survive well into adulthoodand many people who have congenital heart disease go on to live long, productive lives. I excercise 2-3 times a week, namely cardio and weight lifting. Dwayne E. Russell For those with moderate aortic stenosis, the guidelines suggest restricting activities. Guidelines specifically for athletes come from the Proceedings of the 36th Bethesda Conference in 2005. My problem is with cardiologists stating do not lift anything over 50lbs. Most people require treatment once symptoms develop. The procedure was performed at the Cleveland Clinic. PS: I noticed that the option Notify me of follow-up comments by email doesnt seem to work. In fact, one young man died 5 years after operation (from other non related causes) and the study on his aorta tissue revealed that the device helped it to heal, presenting a healthy histology. The material on this site may not be reproduced, distributed, transmitted, cached or otherwise used, except with the prior written permission of Cond Nast. Im 39 also diagnosed with BAV when I was 31. Or, is it something that can wait until they get sports physicals in their teens? In March 2019, media outlets hailed two new studies on transcatheter aortic valve replacement (TAVR) as potentially signaling the beginning of the end of open heart surgery for aortic stenosis. And slow enlargement of the aorta is common for patients with BAV. EKG and echocardiogram were done showing BAVD. The echo in Jan asc aorta Diam 4.2 cm z-score 6.4. Miley Cyrus - Singer & Actress - Tachycardia. Moreover, there is a myriad of operations that such patients may have had, each with its on set of considerations. Last echo measurements LDid 6.3cm z-score 2.4, LVIDs 4.1 cm z-score 2.0, LVPWd 1.2cm z-score 1.9, asc aorta Diam 4.0 cm z-score 5.8. Schwarzenegger visited USC on April 16, 2007 and saluted the new Cardiovascular Thoracic Institute (CVTI), according to a press release issued by The Keck School Of Medicine at USC. Yes, I am aware of the work by Dr. Dietz. That is someones life.. "I feel fantastic and have already been walking the streets of Cleveland enjoying your amazing statues. I will keep you posted. My son is 12 years old. She is afraid, I can understand that. While the defective valve may be easy to see, the defect also causes changes in the tissues of the aorta and the heart. Etc? The doc says the big risk is due to the blood thinners. At my last evaluation, my aorta measured between 4.3-4.5 cm, depending on where the measurement was taken, and the regergitation was classified in the moderate range. Ed Helms - Actor - Undisclosed CHD. Latifah has taken on her mom's caregiving duties, along with relatives and a nurse, whenever she is on the east coast. Im 37 years old male, live in Croatia, 191 cm, 94 kg, very athletic, practicing various sports my whole lifetime. My question is: is it okay for me to participate in weight lifting with BAV? I mean, when competing, my average heart rate is close to 159 and my max HR is around 170. Thanks in advance. The heart has a difficult time coping with extra demands of exercise. The aortic root is moderately dilated (max 46mm sinus to opposite commissure but you can measure 48off axis). Dr. Larry, very helpful content. I knew none of this until a year ago. Hi, my name is Hector and I am 34 years old. I realize that appointment availability for medical specialistsin your case, the pediatric cardiologistcan be tight. March 10, 2016 at 1:50 pm. Im paranoid to exercise too much for fear that I will do damage to the valve. Thank you to every doc and nurse on my team.". I realise that I will eventually need the valve replaced again and just hope that things go as well next time. What does heavy weights mean? . Exercise and sports are usually safe if there is mild aortic root enlargement but no other heart or vascular problems. The Cardiologist now suggesting taking beta blockers as a way to slow things down and has advised that anywhere from 4.5 to 5.0 is where he would consider intervening. When he was 7 we noticed his heart racing at age 11 his bicuspid aortic valve was diagnosed We have been told his valve is at the top of the normal size chart. He sees his cardiologist every year. For example, are there data that shows what happens to aortic diameters once sports have been stopped? Youve got the right idea, though. Make no mistake, though. Many heart conditions can be controlled or repaired once theyre diagnosed. However, many people will develop complications from their BAV and may need surgery in their lifetimeeither to repair or replace the aortic valve, the thoracic aorta or both. I had it replaced in 2014 and am now 16. Thanks very much. Lastly, a human donor valve was inserted into the pulmonary valve position. They ruled out Marfans syndrome because his aorta was dilating. The risk of BAV in children of parents with BAV is probably about 10%. I have BAV with an ascended aorta and heart murmur. In the simplest terms, a bicuspid aortic valve can be a serious heart valve disorder in which the valve only has two leaflets, or flaps, that control blood flow through the heart. Ive got my results from my recent echo and a lot of normals on there but main things were regurgitation and stenosis were mild with the aorta measuring about 33mm. Surgery. Only your cardiologist and heart surgeon will be in a position to make those considerations. Mild to moderate ai As youve mentioned, sometimes it can be useful to visit a cardiologist who has an interest in athletes and their heart problems. No pulmonary hypertension Like you mention, one theory is related to the aortic blood flow. Their experiences have been variable, and perhaps for a variety of reasons. I dont train a lot, like 2k bike, 500k run and 100k swim yearly and few competitions sprints and one half IM in a year (32 years old). Here is a link to a diagram that categorizes sports according to their dynamic and static components: http://www.athletesheart.org/wp-content/uploads/2013/12/Classification-of-Sports-300217.png. The valve may also become stiff due to calcium deposits on the leaflets over time. Bicuspid aortic valve can be found in 1% to 2% of the general population . The worse the narrowing, the greater will be the difference in blood pressure between the arms and the legs. A total of 25,556 newborns (51% male; mean age, 12 days) underwent echocardiography. Although bicuspid aortic valves can occur . In your experience how long are we talking before I have to have surgery and do beta blockers really help in prolonging the need for surgery. Rose underwent the procedure last week, and said he would be going home to rest for a couple of weeks before returning in March. I would defer to Dr. Dietz since youve already contacted him. I used to run a lot. I got Edwards magna perimount 25mm bovine AV and Valsava graft for aortic root replacement. Your advice is always invaluable and most appreciated. Health eCooking is a registered trademark of Baldwin Publishing, Inc. Cook eKitchen is a designated trademark of Baldwin Publishing, Inc. Any duplication or distribution of the information contained herein without the express approval of Baldwin Publishing, Inc. is strictly prohibited. Okay, thats greatbut I left feeling uncomfortable with the diagnosis. I lifted weights for many years and spent almost all my life in physically demanding jobs. I know that there can be complication with Dacron graft or even aorta aneurysm building up but Ill stay on positive side since I have no tissue disorder and its highly unlikely that with properly working aortic valve I would develop another one in that short period of time. Early after operation, and for perhaps the first month, we typically limit activities that place stress on the shoulders and sternum. My 28, got a BAV with mild stenosis and a aortic root measuring 40mm. My name became public 25 years ago this week. We just saw the cardiologist in July and again same symptoms and no significant cardiac changes . I started experiencing palpitations last year along with several instances of light-headedness. My daughter (16 y/o) has a St Jude mechanical mitral valve (adult size valve even though she has had it for 7 years). For most athletes with only mild enlargement of the aorta and no problems with the aortic valve, there should be no activity restrictions. That said, the recommendations dont address WHEN that screening should occur. Search Heart Hospitals California Governor and movie star of films including The Terminator and The Predator, Arnold Schwarzenegger marked the 10-year anniversary of his heart surgery at USCs Health Science Campus. With so many similar stories, do you know why there is not more statistical data or studies done with regards to sports and BAV and changes in aortic diameter? . Several famous people were reported to have had bicuspid valves: former first Lady Barbara Bush, the comedian Robin Williams, and California Governator Arnold Schwarzenegger. September 13, 2017 1:00 PM. There was only a 0.2 cm increase in the previous 7 years (so from age 21 to 28). To list down the names of celebrities including entertainers, musicians, politicians, TV personalities, sports figures, etc. 1) What kind of sports are recommend to me according to my situation? He is certainly expert in the area of drug therapy to reduce the rate of aortic enlargement. I would like nothing more than to have this repaired so I can return to my lifestyle, I cant understand why I cant have it fixed as it is my choice to have surgery. It makes the heart work harder than it should. You could probably settle on a plan for return to exercise with your surgeon and cardiologist. Less than one month ago Schwarzenegger was (virtually) hosting the Austrian World Summit of the Schwarzenegger Climate Initiative, which introduced speakers like Prince Charles, Jane Goodall, and Pakistani Prime Minister Imran Khan. "I had to make lifestyle and diet changes, she said. Thank you for this blog! In my early 40s I thought that I was getting out of breath more than I should and eventually began to feel weak or nervous during a game, but only on Sunday. Thanks for sharing your sons story with BAV. Im just going to do my very best to stay the course and have annual echoes to track my valve. Kimberly has experienced heart valve disease firsthand. This can be very frustrating to athletes who are used to being more active. The only question I have is in regards to having my children screened. Garth was already familiar with heart diease before her diagnosis because it runs in her family. 2) According to your explanation I rather not do cycling sports, but can I have low intensity sport like cycling or swimming twice a week for 90 minutes each, or 3 times for 60 minutes? 2 Such features need to be considered before surgical intervention. The exact cause of aortic enlargement in patients is not known. . So you know, this is not uncommon for heart valve surgery patients. This has caused a Thoracic aortic aneurysm that is 4.3 cm. "Listen to the voice inside, the one we all so easily ignore. With aortic dissection, the aorta can develop a tear on its inside wall, leading to unraveling of its layers, and even rupture. As a result, the valve doesn't function perfectly. I too am looking for information on effects to performance since I am a Masters racing cyclist with 25 years of racing/riding long events.
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